Usually with my epilepsy I like to keep it in and not talk about it. But I suppose this may be a weight lifted off my shoulders.
So in 2014 I was diagnosed with Partial Epileptic Seizures. The type of seizures you zone out of everyday life, or most of the time have little seizures in my sleep.
I originally went into the doctors with a suspected heart murmur. I was experiencing the feeling of my heart feeling like it was going to fast or gonna jump out of my chest. I had a doctors appointment, which I very nearly missed. One moment it was 3:30 next moment it was 4:30 and I didn't know where the time had gone.
I had a specialist come specifically to the doctors to meet me so I'm lucky because I was so late he was able to see me. I phoned my mum in a panic as she was already at the doctors waiting.
At the time it seemed as if I had a panic attack- I never ever had one of them.
We were all just talking and mum was explaining the doctor about times that I used to zone out , or I smelt burning, or my night terrors when I was younger.
I was then referred to a neurologist. After EEG's and MRI's I was diagnosed. I'm not gonna lie, it hurt finding out. I was learning to drive at the time , I also felt alone. I tried different medications and was told and Stress may be the cause of it all.
Fast forward 2 years and I was having ups and downs. Some weeks/months I was skipping round fine, some days I found my self on the floor in the toilets at work after 'zoning out'.
I reduced days at work, and gave up college. But recently it flared up again... (is that the right word)
I now have experienced full body seizures, where my body gives way and I fall the the ground and apparently convulse. I wake up confused. So I'm now waiting for a urgent neurologist appointment.
I feel epilepsy is such a closeted thing. I found I had no one to talk to about it at my age group. So hopefully writing this will give young adults a place they can come to relate to. No I'm not a QUEEN of bossing my seizures at the moment. But I am experiencing them. I'm fighting.
So here's to keep you updated on my situation and I will write more posts about my journey in the future.
Keep Slaying,
Take Care,
SIMPLYKATSINELLA
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